May is Lupus Awareness Month

SoutherNtellect wrote: is it a localized or diffuse pain? how do you cope with the pain and explain to others who don't understand that somedays you just physically can't do stuff, without them thinking you're making excuses?

my mom walks as if her lungs arent about to explode... keeping up appearances smh... i wish she'd have a seat

SoutherNtellect wrote: is it a localized or diffuse pain? how do you cope with the pain and explain to others who don't understand that somedays you just physically can't do stuff, without them thinking you're making excuses?

It can be both types of pain depending on what I'm dealing with at the time. Sometimes it's like my skin hurts...like I can't let people touch me. Sometimes it's just my joints. Sometimes it's everything.

I don't know that I cope very well. And honestly sometimes I just go off on people. Because people don't get it. It's not their fault, but they just don't get it. Like, in the last 3 weeks I left the house 4 times, 3 to go to the grocery store and once to go to dinner. And yet folks will still be like well why don't you xyz? Like girl, I'm gonna need you to not talk to me because believe me I want to be out living life.

I went off on my mom today. I really didn't mean to but I couldn't help it because I'm sick and sometimes I can't take hearing about people's mundane "problems". I can't breathe, I can't work, I can't take care of myself, I have no control over anything, f*ck I care about my sister's dog needing a baby sitter.

But I really try not to be like that. Because it's not right and it's really not who I am. I am alive. Considering everything, I am blessed. Nobody is going to let me be homeless or starve. That is A LOT to be happy about. Really and truly.