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maysay1 
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 Posted: May 05 2014 at 5:39pm |
 Alias_Avi wrote:
 
I am so weak. I can't even read stuff like that without feeling nauseous let alone live through it
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But it's so important to know about it because if someone you love is going through it you can encourage them to get to a doctor and hopefully get some help. That's the important thing. Just asking the questions is doing such a great thing. Be proud of yourself!
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maysay1
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Posted: May 05 2014 at 5:43pm |
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You know what's the funniest thing? A lot of places will have walks for lupus this month. Which, is a good thing.
But, one of the common symptoms is sun sensitivity. Like to the point of breaking out in hives or a rash, swelling up, and needing to recover for like 3 days in bed after being in sunlight for 10 mins.
And they'll have the walks outside. I'm always like, are y'all just trying to kill me? Lol. We need to have this walk in the gym or at night or something.
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PurplePhase
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Posted: May 05 2014 at 5:43pm |
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*hugs* Maysay. I hope you are feeling better soon.
my BIL is currently on the transplant list for kidney; lupus. He's been on the list for a few years now. His condition isn't bad enough to get him moved to top, but it's bad enough that he's been hospitalized several times. It's getting pretty hard on him after so many years. He was diagnosed around 20 yrs ago.
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maysay1
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Posted: May 05 2014 at 5:49pm |
sugabanana wrote:
Awww Maysay . Thanks for educating me on this disorder. I never knew the extent of the disease. I just thought people were just fatigued and tired all day. |
Yeah, some people are. And some don't really have symptoms at all. Lupus can be so different for every individual. And thanks for the love!
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sugabanana
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Posted: May 05 2014 at 5:51pm |
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Maysay is this disorder hereditary? Or does it just develop in people?
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maysay1
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Posted: May 05 2014 at 5:51pm |
PurplePhase wrote:
*hugs* Maysay. I hope you are feeling better soon.
my BIL is currently on the transplant list for kidney; lupus. He's been on the list for a few years now. His condition isn't bad enough to get him moved to top, but it's bad enough that he's been hospitalized several times. It's getting pretty hard on him after so many years. He was diagnosed around 20 yrs ago.
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Well he sounds strong since he's made it this far so I hope his strength continues. I know it can be hard. Probably the hardest part is the mental...a lot of times you can learn to bear the pain and inconvenience. But how do you stay positive when your dreams crumble? I don't have the answer to that.
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kerysdream7
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Posted: May 05 2014 at 5:56pm |
thanks for sharing your story. Was it easy for the doctors to diagnose your condition?
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maysay1
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Posted: May 05 2014 at 5:57pm |
sugabanana wrote:
Maysay is this disorder hereditary? Or does it just develop in people? |
The research says it's not hereditary (as in, if your mom has it that doesn't mean you will). But it does seem to run in families. There are a lot of autoimmune issues in my bio fam on my mom's side. Don't know dad's side. A lot of people went undiagnosed though so sometimes it's hard to tell. Autoimmune issues are so common now (our environment has triggered some nasty stuff) so basically anyone can get it. But it's more common in women of color.
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PurplePhase
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Posted: May 05 2014 at 6:00pm |
maysay1 wrote:
Well he sounds strong since he's made it this far so I hope his strength continues. I know it can be hard.
Probably the hardest part is the mental...a lot of times you can learn to bear the pain and inconvenience. But how do you stay positive when your dreams crumble? I don't have the answer to that.
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yes he is strong. It may have helped him that he was in excellent shape before he was diagnosed. This was one of the hardest parts for him when he started getting sick, not being able to be active anymore. He's had good periods, then he will be sick for months.
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mzsophisticated
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Posted: May 05 2014 at 6:06pm |
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My mom has sjorgrens syndrome which can be a gateway to lupus and I think she said her endocrinologist said she is beginning to develop signs lupus. I have to be careful because I have Hashimoto's Thyroiditis which is an autoimmue thyroid condition
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