I no longer work due to my disease. I'm in a wheelchair almost all the time. I get rashes, I live on morphine IR and MS Contin. My nervous system has been affected and I almost lost my life May 14 when I went into respiratory arrest. Lupus is no joke but I'm still around. I wrote two books about my disease available on Amazon, Barnes and Noble, and iBooks called Diary of A Sick Chick, year one and two.
I'm getting married to a great guy but no date set yet and I'm much closer to my family. I take about thirty pills a day but I try to make the most out of life.