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Lupus: My Story (LONG)

 
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NattyDoll View Drop Down
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Post Options Post Options   Thanks (1) Thanks(1)   Quote NattyDoll Quote  Post ReplyReply Direct Link To This Post Posted: Feb 27 2013 at 1:12pm
I hope you're doing well dear. Keep fighting!
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DolphinLuver61 View Drop Down
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Post Options Post Options   Thanks (2) Thanks(2)   Quote DolphinLuver61 Quote  Post ReplyReply Direct Link To This Post Posted: May 16 2013 at 5:31pm
I can very well relate to your story. I also have Lupus & Fibromyalgia.  Over 13 yrs ago I was dx with Firbo,  I had no clue what was going on with me, I was experiencing constant pain, fatigue. Finally I went too my Primary Care and was referred to Rheumatology, which I had 14 out of the 18 tender points. I was on numerous pain medications, also I went through aquatic therapy. During all of this I also lost the majority of my hair, which was very disturbing so I made a decision to try hair weaves, and fro there I've also tried lace fronts, so I switch off and do both at the present.
Not many people understand what Autoimmune Disorders can do to one's self esteem, However, once I not only educated myself, and accpted my illnesses, I began to be an Advocate for thoe who suffer from Chronic Pain.
I'm so thankful that there's so many options for hair of various textures and I can wear any style, it's great and it makes me feel so much better within when I can get my hair done.

DolphinLuver61
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supermodelsonya View Drop Down
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Post Options Post Options   Thanks (3) Thanks(3)   Quote supermodelsonya Quote  Post ReplyReply Direct Link To This Post Posted: Jun 17 2013 at 11:53am
Update:

I no longer work due to my disease. I'm in a wheelchair almost all the time. I get rashes, I live on morphine IR and MS Contin. My nervous system has been affected and I almost lost my life May 14 when I went into respiratory arrest. Lupus is no joke but I'm still around. I wrote two books about my disease available on Amazon, Barnes and Noble, and iBooks called Diary of A Sick Chick, year one and two. 

I'm getting married to a great guy but no date set yet and I'm much closer to my family. I take about thirty pills a day but I try to make the most out of life. 
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bianhuakai View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote bianhuakai Quote  Post ReplyReply Direct Link To This Post Posted: Jul 31 2013 at 9:01pm
Want to buy good quality and cheap tablet you, please see our electronic products: myefox.com, will not let you down.

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510QUEEN View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 510QUEEN Quote  Post ReplyReply Direct Link To This Post Posted: Apr 11 2014 at 12:40pm
To all the ladies.....keep your head and spirits up.  I've never had this but I've had GB (Guliian Barre Syndrome) and my immune system attacked itself so I know first hand how that feels
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Benni View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Benni Quote  Post ReplyReply Direct Link To This Post Posted: Apr 12 2014 at 9:30pm
My heart go out to all of you in pain from debilitating illness.

Keep the Faith.

Love and Prayers.



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