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Lupus: My Story (LONG)

 
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afroqueenz View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote afroqueenz Quote  Post ReplyReply Direct Link To This Post Posted: May 28 2011 at 1:16pm
I'm glad you figured out what was wrong.  I got lucky, my doctors thought I had it, but I don't
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supermodelsonya View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote supermodelsonya Quote  Post ReplyReply Direct Link To This Post Posted: May 28 2011 at 8:31pm
That's awesome news afroqueenz! I'm happy for you! HeartTongue
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BronzeBeauty View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote BronzeBeauty Quote  Post ReplyReply Direct Link To This Post Posted: Jun 20 2011 at 9:19pm

I just wanted to update you all on my situation. My doc gave me the diagnosis of fibromyalgia and I also finally got a referral to a rhuematologist in August to test furthur for Lupus. My doc also gave me a script for tramadol, it really only seems to make me sleepy as opposed to relieving pain Thumbs Down

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supermodelsonya View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote supermodelsonya Quote  Post ReplyReply Direct Link To This Post Posted: Jun 21 2011 at 7:23am
Fibromyalgia....that's a condition that goes hand in hand with Lupus. A lot of the symptoms are similar.

http://www.myalgia.com/lupus.htm This is a great article that answered a lot of my questions. Please keep me posted about your condition and don't give up. Tramadol makes me soooooo queasy, I can't tolerate it too well. Amitryptaline is better for me.
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supermodelsonya View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote supermodelsonya Quote  Post ReplyReply Direct Link To This Post Posted: Jun 21 2011 at 7:27am
http://www.thefightlikeagirlclub.com/2011/05/sonyas-fight-like-a-girl-story-lupus/

For anyone interested, my story was featured on the Fight Like A Girl Club website!
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bellacnella View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote bellacnella Quote  Post ReplyReply Direct Link To This Post Posted: Jul 19 2011 at 4:21am
Originally posted by supermodelsonya supermodelsonya wrote:

http://www.thefightlikeagirlclub.com/2011/05/sonyas-fight-like-a-girl-story-lupus/

For anyone interested, my story was featured on the Fight Like A Girl Club website!
 
how are you doing SMS?  I miss ya :o)    Smile
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Post Options Post Options   Thanks (0) Thanks(0)   Quote bellacnella Quote  Post ReplyReply Direct Link To This Post Posted: Jul 19 2011 at 4:24am
Originally posted by bellacnella bellacnella wrote:

Originally posted by supermodelsonya supermodelsonya wrote:

http://www.thefightlikeagirlclub.com/2011/05/sonyas-fight-like-a-girl-story-lupus/

For anyone interested, my story was featured on the Fight Like A Girl Club website!
 
how are you doing SMS?  I miss ya :o)    Smile
 
I just read your story and I had no idea.  Hug Very inspiring sms!
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supermodelsonya View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote supermodelsonya Quote  Post ReplyReply Direct Link To This Post Posted: Jul 19 2011 at 1:31pm
Originally posted by bellacnella bellacnella wrote:

Originally posted by supermodelsonya supermodelsonya wrote:

http://www.thefightlikeagirlclub.com/2011/05/sonyas-fight-like-a-girl-story-lupus/

For anyone interested, my story was featured on the Fight Like A Girl Club website!
 
how are you doing SMS?  I miss ya :o)    Smile


Hey there love!!!!!! In a wheelchair now...I switch it up with a cane every now and then. Breathing problems, kidney issues...but I'm hanging in there. Smile

Miss you too.Heart
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ChrANGist View Drop Down
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Post Options Post Options   Thanks (1) Thanks(1)   Quote ChrANGist Quote  Post ReplyReply Direct Link To This Post Posted: Jul 19 2011 at 5:00pm
I admire your courage and motivation. I just got off work  and  had a bit of a ruff day. I had to get on my knees and pray as much as I could between the crying and asking God for continued strength. I read your story and it is just brave. Loved it. Hang in there.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote vibrant1 Quote  Post ReplyReply Direct Link To This Post Posted: Jul 19 2011 at 5:04pm

supermodelsonya I am sorry to hear about your condition, the doctor' tested my son for Lupus.  I am very fimilar with it.  But he does not have it, my brother find out he had it about 5 years ago.  It is a very painful thing.  Sometimes he swells and ache so bad he can't walk.  I am glad you at least know what is wrong and can get the proper help.  I will keep you in my prayer's!!!!!!!!!!!

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